Long-term study of myotonic dystrophy type 1
Part of Bones, joints & muscles, Brain & nervous system, Genetic & congenital clinical trials.
This study is a long-term follow-up for people with myotonic dystrophy type 1. It aims to find better ways to measure how the disease progresses, which could help develop future treatments.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You are between 18 and 70 years old.
- You have a confirmed diagnosis of myotonic dystrophy type 1 (DM1) or childhood-onset DM1.
- You do not have serious kidney or liver disease, uncontrolled diabetes or thyroid issues, or active cancer (other than skin cancer).
- You do not currently have an alcohol or drug use disorder.
- You are not pregnant or planning to become pregnant during the study.
- You are willing to avoid taking mexiletine or similar medications for 3 days before each study visit.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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