A study tracking myotonic dystrophy over 24 months
Part of Bones, joints & muscles, Brain & nervous system, Genetic & congenital clinical trials.
This study follows people with myotonic dystrophy (DM1 or DM2) for 2 years to learn more about the disease. You must already be in the DM-Scope registry and have certain medical records available.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You are already enrolled in the DM-Scope registry with a genetic diagnosis of DM1 or DM2.
- You are 18 years or older and not pregnant.
- You have a Body Mass Index (BMI) between 18.5 and 30, and weigh at least 45 kg (99 pounds).
- You have a sign of myotonia (delayed muscle relaxation after contraction) and, if you have DM1, a MIRS score of 2, 3, or 4.
- You can walk 10 meters with or without a cane or walker.
- You have not taken mexiletine (a drug for myotonia) in the 18 months before the study starts.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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