Sickle cell disease registry for young patients

This study collects kidney tissue samples from people with sickle cell disease and healthy volunteers to better understand how sickle cell affects the kidneys. If you have sickle cell disease or a related blood disorder, you may help researchers find new ways to protect kidney function.

This study looks at how different types of sickle cell disease (SS, S/beta0, S/C) are linked to blood clotting and disease severity. It may help doctors better understand the condition and how to treat it.

This study looks at a certain type of blood cell (megakaryocytes) in people with sickle cell disease. It aims to learn more about the disease and is only for patients followed at the Guadeloupe sickle cell center who are in a stable phase (no recent crisis or transfusion).

This study is a registry that collects information about people living with sickle cell disease. It may help researchers better understand sickle cell types in Germany, Austria, and Switzerland and support future research and care.

This study collects feedback through surveys, interviews, and focus groups from people affected by sickle cell disease. Your input helps the research team improve how genomic and gene-therapy information and needs are understood for patients and caregivers.

This study looks at how major organs like the brain, kidneys, heart, and liver are affected in adults with sickle cell disease, whether they've had a bone marrow transplant or gene therapy, or are continuing regular treatment. You'll get detailed tests that can help doctors understand the disease better, which may lead to improved care.