Deep health check study for adults with sickle cell disease
Part of Blood & lymphatic, Brain & nervous system, Heart & circulation, Kidney & urinary, Lungs & breathing clinical trials.
This study looks at how major organs like the brain, kidneys, heart, and liver are affected in adults with sickle cell disease, whether they've had a bone marrow transplant or gene therapy, or are continuing regular treatment. You'll get detailed tests that can help doctors understand the disease better, which may lead to improved care.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You are 18 years or older.
- You have been diagnosed with sickle cell disease (any type).
- You either plan to have a bone marrow transplant or gene therapy, or you are not planning to have these treatments.
- You can travel to the NIH clinical center in Bethesda, Maryland for study visits.
- You have had at least one sickle cell complication such as stroke, kidney problems, high pressure in the lungs, or repeated pain crises.
- You do not have a metal implant that is not safe for MRI, are not pregnant or breastfeeding, and have not had a transplant before.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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