Clin2
NCT07870616Likely a fitNot yet recruiting

Health problems in adults with craniofacial fibrous dysplasia

Craniofacial Fibrous Dysplasia

Part of Bones, joints & muscles clinical trials.

This study looks at medical issues that adults with fibrous dysplasia (a rare bone disease) affecting the face or skull may face. It uses existing medical data to understand how this condition affects people over time.

Summary written for real people, not researchers, by Clin2.

Phase
N/A
Enrollment
500 people
Ages
18 years and older
Study type
Observational

Who can take part

  • You are 18 years or older.
  • You have been diagnosed with fibrous dysplasia (a condition where bone grows abnormally).
  • The disease affects your skull or facial bones (craniofacial area).
  • You agree to allow your medical data to be used for research.

View the official record on ClinicalTrials.gov

Quick eligibility check

Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.

Similar studies

Other trials that look related to this one.

NCT02639312Recruiting
Study of how craniofacial differences develop over time

This study follows children and adults with craniofacial (head/face) differences to learn how their growth changes over time. It also enrolls unaffected family members and healthy volunteers to compare what is “typical,” using scans and optional genetic testing.

Bethesda, Maryland
NCT07569731Recruiting
Understanding Fibrous Dysplasia Through Patient Data and Tissue

This study collects information from patients with fibrous dysplasia (a bone condition where normal bone is replaced by fibrous tissue) and related syndromes to better understand the disease. Researchers will review your medical records, imaging scans, and stored tissue samples to learn more about how the disease develops and progresses.

Bologna, BO
NCT07422454Recruiting
Database study on facial and skull development in children

This study is building a database of medical information and images from children with certain conditions affecting the face and skull, such as craniosynostosis, achondroplasia, and osteogenesis imperfecta. The goal is to better understand these conditions and improve future care.

Paris
NCT00001727Recruiting
Understanding fibrous dysplasia and McCune-Albright syndrome

This study follows patients with fibrous dysplasia (a condition where normal bone is replaced by fibrous tissue) or McCune-Albright syndrome (a genetic condition affecting bone, skin, and hormones) to understand how these conditions develop and progress over time. There is no experimental treatment; researchers simply want to learn more about these rare conditions.

Bethesda, Maryland
NCT01967511Recruiting
Study to better understand fibromuscular dysplasia

This trial studies people with fibromuscular dysplasia (FMD) and related conditions to learn what causes them and how they behave over time. You may also be able to join if you are a healthy person matched by age and gender to help compare results.

New York, New York
NCT06219421Recruiting
Using facial photos to understand genetic conditions

This study uses regular front and side facial photos to help doctors better understand facial features in people with genetic conditions or after surgery. It may help improve how we diagnose and care for these conditions.

Paris

Hear when a new Craniofacial Fibrous Dysplasia trial opens

We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.