Understanding Fibrous Dysplasia Through Patient Data and Tissue
Part of Bones, joints & muscles, Pain clinical trials.
This study collects information from patients with fibrous dysplasia (a bone condition where normal bone is replaced by fibrous tissue) and related syndromes to better understand the disease. Researchers will review your medical records, imaging scans, and stored tissue samples to learn more about how the disease develops and progresses.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have been diagnosed with fibrous dysplasia, McCune-Albright syndrome, or Mazabraud syndrome
- You received care at Istituto Ortopedico Rizzoli (IOR) since 2009 or later
- Your medical records and imaging scans (X-rays, CT, MRI, etc.) from your treatment are available in the hospital system
- A tissue sample from your condition was stored in the hospital biobank and is sufficient quality for study
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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