Support procedures study for ALS using electronic health records
Part of Brain & nervous system, Hormones & metabolism clinical trials.
This study is about improving the research process for people with ALS by using electronic health records from participating clinics. If you have ALS and receive care at an Epic-using center, you may be asked to help with consent and study procedures.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have been diagnosed with ALS or a related condition (like primary lateral sclerosis or progressive muscular atrophy).
- You receive care at a clinic site that uses Epic for electronic health records.
- You can understand the study and provide consent, or a legal proxy can consent for you if needed.
- You can understand English or Spanish, since the study requires those languages.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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