Quality of life study in adult women with X-ALD
Part of Brain & nervous system, Genetic & congenital, Hormones & metabolism clinical trials.
This study looks at quality of life in adult women who have X-linked adrenoleukodystrophy (X-ALD). It may help researchers understand how this condition affects daily life and well-being.
Summary written for real people, not researchers, by Clin2.
Who can take part
- Be able to give informed consent (and agree to join the study).
- You must be female and at least 18 years old at the time you consent.
- You must have proven X-ALD—either higher VLCFA lab levels or a known ABCD1 gene mutation.
- You must not be currently pregnant.
- You must have an assent plan if required (the study needs your agreement/understanding as part of consent).
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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