ALS and related brain disease biospecimen biobank
Part of Brain & nervous system, Hormones & metabolism clinical trials.
This study builds a blood and spinal fluid (lumbar puncture) sample library from people with ALS, ALS-FTD, or similar neurodegenerative diseases. Your samples help researchers study these conditions, even if you are not receiving a new treatment.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have ALS, ALS-FTD, or a similar neurodegenerative condition as diagnosed by a clinician
- You (or your legally authorized person) are willing and able to sign consent
- If you are participating because of family history, you do not have ALS or another motor neuron disease
- If you have a family history, the affected relative must be a close blood relative (first, second, or third degree)
- You can usually have blood draws and, if needed, a lumbar puncture you can safely tolerate
- You do not have conditions that make symptoms likely from something else unrelated, or safety risks that prevent lumbar puncture
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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