Heart Coherence Training for Vascular Ehlers-Danlos
Treatments studied
Part of Blood & lymphatic, Genetic & congenital, Heart & circulation, Skin clinical trials.
This study tests whether a breathing and heart-rate training program (called Heart Coherence Training) can help people with Vascular Ehlers-Danlos syndrome feel better. It's done from home using your phone and a computer or tablet.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You must have a confirmed diagnosis of Vascular Ehlers-Danlos syndrome (vEDS) with a COL3A1 gene change.
- You must be between 12 and 45 years old.
- You need a smartphone and another device (like a tablet or computer) with a camera and microphone.
- You must have a stable internet connection.
- You must speak English.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study tests whether a supervised exercise and lifestyle program is safe and feasible for adults with vascular Ehlers-Danlos syndrome (vEDS). You will follow a gentle activity plan designed for your condition, and researchers will track your health and well-being over time.
This study looks at how bodies with vascular Ehlers-Danlos syndrome (vEDS) process nutrients and energy differently. By comparing people with vEDS to healthy volunteers, researchers hope to find new ways to manage the condition better.
This Phase 3 study compares celiprolol (a blood vessel–related medicine) versus placebo to see which better reduces vascular risks in people with vascular Ehlers-Danlos syndrome. It requires confirmed COL3A1 genetic findings and specific imaging before starting.
This study tests a smartphone-based health coaching program designed to help people with a thickened heart muscle (left ventricular hypertrophy) improve their fitness and overall cardiovascular health through guided lifestyle changes. The program uses digital tools and a health coach to support daily activity and wellness.
This study collects information about how the body’s automatic nerves (autonomic nerves) affect symptoms like fast heart rate on standing, fatigue, and related conditions in people with Ehlers-Danlos syndrome. It also enrolls healthy volunteers to compare results, which may help doctors understand these conditions better and improve care.
This study tests whether a special education program about managing emotions and stress helps teenagers with moderate-to-severe congenital heart disease (a heart condition from birth) feel better and cope with their condition. Participants attend sessions and complete surveys over time.
Hear when a new Vascular Ehlers-Danlos Syndrome trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.