Bone health study for Marfan and Ehlers-Danlos syndromes
Part of Blood & lymphatic, Bones, joints & muscles, Genetic & congenital, Heart & circulation, Skin clinical trials.
This study looks at bone density in people with Marfan or Ehlers-Danlos syndromes to understand how these conditions affect bones over time. It may help improve care and monitoring for bone health.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have been diagnosed with Marfan syndrome or Ehlers-Danlos syndrome.
- You have had at least one bone density scan (a test that measures bone strength).
- You do not have metal implants in your spine or hip.
- You have no history of bone cancer.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study collects biological samples and related health information for people with Marfan syndrome or similar inherited conditions. It helps researchers better understand these conditions and may lead to improved care for patients in the future.
This study looks at skin cells (fibroblasts) from people with Marfan syndrome or other genetic conditions that cause thoracic aortic aneurysms. The goal is to understand how these cells behave, which may help improve future treatments.
This study uses an online questionnaire to explore how Ehlers-Danlos syndrome (EDS) may affect gynecological health. It compares women with EDS to those without, to better understand any differences.
This trial studies whether doing moderate exercise is safe and helpful for people with Marfan syndrome. It aims to see how exercise affects heart and health measures, like how the aorta and body respond over time.
This study uses a non-invasive 3D scan to better measure facial features in people with Marfan syndrome. It may help researchers describe face differences more accurately, without needles or surgery.
This study looks at how daily physical activity levels relate to health and emotional well-being in adults with Marfan syndrome. You would complete an online questionnaire in Spanish, and the results may help improve future care and activity guidance.
Hear when a new Marfan Syndrome trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.