Do videos of clinic meetings improve quality of life in ALS?
Part of Brain & nervous system, Hormones & metabolism clinical trials.
This study looks at whether watching videos of your clinic team meetings helps improve quality of life for people with ALS and their caregivers. You and your caregiver would both take part, and you'd need to be able to use the internet and email.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You are at least 18 years old and have been diagnosed with ALS.
- A caregiver (like a family member or friend) will also take part in the study with you.
- You can attend clinic visits for the next 12 months.
- You can read and speak English or Spanish.
- You have internet access and an email address (or are willing to create one).
- You don't have major memory or mental health problems, and you aren't pregnant.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study looks at how people with ALS and their caregivers talk and interact with each other. It may help researchers understand communication challenges and improve support for both.
This study tests a program to help people with ALS and their partners cope with emotional stress together. It uses live video sessions, so you can take part from home and learn ways to support each other.
This study follows people with ALS and healthy volunteers to measure how specific body fluids, symptoms, and at-home tracking change over time. It may help researchers find early signs of disease changes and better ways to measure treatment effects.
This trial tests a new drug called VTx-002 to see if it is safe and tolerable for people with ALS. You may be able to join if you have had symptoms for less than 18 months and have a caregiver who can help.
This study looks at how much burden (stress and day-to-day strain) ALS creates for both the patient and the main caregiver. It may help shape better ways to support families facing ALS over time.
This study tests whether a video-guided exercise program for body awareness and movement control can help people with ALS improve their balance and daily function. It may be an option if you can sit up on your own and don't have other nerve or muscle problems.
Hear when a new Amyotrophic Lateral Sclerosis (ALS) trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.