Creating a prediction score for lung transplant or death in Alpha-1 Antitrypsin Deficiency
Part of Digestive system, Genetic & congenital, Lungs & breathing clinical trials.
This study is creating a simple scoring system to predict who with Alpha-1 Antitrypsin Deficiency-related emphysema might need a lung transplant or die from the disease. Your medical records from 2010–2025 will help build this tool, with no extra tests or visits required.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You were diagnosed with emphysema or COPD caused by a specific genetic condition (Alpha-1 Antitrypsin Deficiency) between 2010 and 2025.
- You have one of the severe genetic types (like PiZZ or other rare mutations).
- A CT scan of your chest confirmed emphysema within a year of your diagnosis.
- You are at least 18 years old.
- You have not objected to your medical data being used for research, and you are covered by a social security plan.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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