Clin2
NCT02399527Possibly a fitRecruiting

Lymphatic problem registry for tracking outcomes

Lymphatic MalformationGeneralized Lymphatic Anomaly (GLA)Central Conducting Lymphatic AnomalyCLOVES SyndromeGorham-Stout Disease ("Disappearing Bone Disease")Blue Rubber Bleb Nevus SyndromeKaposiform LymphangiomatosisKaposiform Hemangioendothelioma/Tufted Angioma

Part of Blood & lymphatic, Bones, joints & muscles, Genetic & congenital, Heart & circulation clinical trials.

This study enrolls people with certain lymphatic (lymph fluid) conditions to collect information and track how they do over time. It may help doctors better understand outcomes and improve care.

Summary written for real people, not researchers, by Clin2.

Phase
N/A
Enrollment
1,000 people
Ages
Any age
Study type
Observational

Who can take part

  • You have been clinically diagnosed with a complex vascular tumor, malformation, or overgrowth syndrome
  • Your condition must include a significant lymphatic (lymph fluid) component

View the official record on ClinicalTrials.gov

Quick eligibility check

Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.

Similar studies

Other trials that look related to this one.

NCT03001180Recruiting
Study blood and tissue markers in vascular anomalies

This study collects extra blood (and sometimes tissue during procedures) to look for markers that can help doctors better understand vascular anomalies. It may not be a treatment, but it can improve future care by finding patterns linked to the condition.

Boston, Massachusetts
NCT06892964Recruiting
Italian registry and biobank for ML patients

This study creates a national registry and biobank to collect medical information and biological samples from people with any type of ML, helping research into the condition.

Roma
NCT07285005Recruiting· Phase 3
Study of an oral drug for venous, lymphatic, and certain overgrowth syndromes

This trial tests whether the study drug KP-001 can help reduce symptoms like pain, fatigue, or bleeding caused by certain vascular malformations (abnormal blood vessel growths) that can't be surgically removed or haven't responded to other treatments. It's for people age 2 and older with specific conditions such as common venous malformations, lymphatic malformations, or KTS/CLOVES syndrome.

Charleston, South Carolina
NCT05731141Recruiting
Study of lymphatic birthmarks and related genetic conditions

This study follows people who have lymphatic anomalies (lymphatic birthmarks) and sometimes related vascular or genetic conditions. It aims to better understand how these problems develop and what genetic causes may be involved.

Bethesda, Maryland
NCT07519356Recruiting
Registry for blood and lymph node disorders

This study collects information from patients with lymphoproliferative disorders—conditions affecting blood and lymph cells—to help doctors better understand these diseases and improve care. Your medical records and information may be used to support research that could benefit future patients.

Pavia, Lombardy
NCT04123457Enrolling by invitation
Study blood and skin samples to improve lymphedema care

This study collects samples (like blood and possibly lymph fluid-related tests) to help doctors better tailor treatment for lymphedema. It may help researchers find ways to improve outcomes for people treated for swollen, fluid-rich tissue.

Jacksonville, Florida

Hear when a new Lymphatic Malformation trial opens

We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.