Talking about family planning for genetic skin conditions
Part of Bones, joints & muscles, Brain & nervous system, Cancer, Eyes & vision, Genetic & congenital, Hormones & metabolism, Mouth & dental, Skin clinical trials.
This study interviews people with inherited skin conditions (genodermatoses) who want to have children, and the doctors who care for them. The goal is to learn how to better support family planning decisions, like counseling about genetics and pregnancy risks.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You are 18 or older and have an inherited skin condition (such as a disorder affecting skin shedding, fragility, growths, or other genetic skin disease).
- You want to have children in the future (or you are the partner of someone who does).
- Your condition has been confirmed by genetic testing (a doctor or specialist can verify this).
- You are comfortable speaking in English or Dutch for an interview.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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