Remote check-ins for Creutzfeldt-Jakob disease
Part of Brain & nervous system, Infections, Mental health clinical trials.
This study uses video calls to check on people with Creutzfeldt-Jakob disease (a rare brain disorder) and their care partners. It aims to understand how the disease progresses and improve support.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You are over 18 years old
- You have been diagnosed with likely or confirmed prion disease (like CJD) or carry a genetic mutation that causes it
- You have a care partner (like a family member or friend) who can be with you in the same room for every video visit
- Your care partner knows you well enough to describe how you were before you got sick
- You and your care partner have internet access and a device (computer, smartphone, or tablet) for video calls
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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