Understanding CJD through medical records and imaging
Part of Brain & nervous system, Infections, Mental health clinical trials.
This study collects information from patients diagnosed with Creutzfeldt-Jakob Disease (CJD), a rare brain condition, to better understand how it develops and progresses. Researchers will review your medical records, blood tests, brain scans, and other clinical data to identify patterns that could help future patients.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have been diagnosed with definite or probable CJD based on established diagnostic criteria
- You have medical records available, including at least one of: clinical history, blood test results, spinal fluid analysis, brain MRI images, or EEG recordings
- You were hospitalized or evaluated at the participating hospital during the study period
- You or your legal representative must consent to researchers using your medical records for this study
- You do not have a confirmed alternative diagnosis that fully explains your symptoms (such as autoimmune brain inflammation)
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study looks at people who have extra calcium deposits in the brain seen on a CT scan (and also includes some relatives and healthy volunteers). It aims to better understand who has brain calcification and what it may mean, using research visits and scan-based measurements.
This study follows people who have a close family member with inherited Creutzfeldt-Jakob disease (CJD) to understand how the disease develops before any symptoms. It may involve genetic testing and safety-required procedures like brain scans and a spinal fluid test to learn about early changes.
This study looks for early signs of prion disease in people who are at risk, using blood tests, spinal fluid, and thinking tests. It hopes to find ways to diagnose and track the disease earlier.
This trial tests whether the drug efavirenz can help people with Creutzfeldt-Jakob disease (a rare brain disorder). The study aims to see if it can slow the disease and improve daily function.
This study collects information from people diagnosed with certain types of stroke or blood-vessel problems in the brain. It helps researchers understand these conditions by using a large, national database to study patterns and outcomes.
This research study tracks how brain damage progresses in rare neurodegenerative diseases like frontotemporal dementia, primary progressive aphasia, PSP, CBS, and ALS. Researchers use brain imaging and tests to understand how these diseases spread in the brain, which could help develop better treatments.
Hear when a new Creutzfeldt-Jakob Disease (CJD) | Prion Disease trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.