Registry study for inherited and inflammatory eye and joint diseases
Part of Blood & lymphatic, Bones, joints & muscles, Eyes & vision, Genetic & congenital, Heart & circulation, Immune system & allergy, Mouth & dental, Skin clinical trials.
This study is a registry, meaning it collects your medical information to better understand several inflammatory (auto-inflammatory) conditions. It may help doctors and researchers improve diagnosis and future treatments for people with these disorders.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have an inflammatory disease linked to a single gene (monogenic) confirmed by genetic testing, or you meet one of the listed diagnosis categories
- One of the following must fit your diagnosis: Familial Mediterranean fever, Behçet’s disease, Still disease, PFAPA, Schnitzler’s disease, CRMO, or undifferentiated systemic auto-inflammatory disease
- You have a related eye inflammation diagnosis such as non-infectious uveitis (not caused by infection) or non-infectious scleritis (eye inflammation)
- You may also have joint/spine inflammatory disease (spondyloarthritis) that meets standard criteria, or Castleman disease
- You (or your legal representative) must be willing to sign an informed consent/assent form
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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