Clin2
NCT07819890Possibly a fitNot yet recruiting

Trends in home breathing support for ALS patients

Amyotrophic Lateral SclerosisHome Mechanical Ventilation

Part of Brain & nervous system, Hormones & metabolism clinical trials.

This study looks at how people with ALS use home mechanical ventilation (breathing support) over time. It aims to understand the care they receive and how it develops, which may help improve future support.

Summary written for real people, not researchers, by Clin2.

Phase
N/A
Enrollment
400 people
Ages
18 years and older
Study type
Observational

Who can take part

  • You must have a diagnosis of ALS (amyotrophic lateral sclerosis).
  • You need to have had at least two hospital visits related to your ALS diagnosis between 2012 and 2026.
  • You need to have had at least one hospital visit related to mechanical ventilation (breathing support) between 2012 and 2026.
  • You need to have had at least one hospital visit with a special code for mechanical ventilation (called a 'process marker') between 2012 and 2026.
  • There are no exclusions – anyone meeting the above can take part.

View the official record on ClinicalTrials.gov

Quick eligibility check

Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.

Similar studies

Other trials that look related to this one.

NCT05744310Recruiting
Long-term ventilation support and quality of life in ALS

This study looks at how long-term breathing support (a ventilation device used over time) affects quality of life for people with ALS and their families. It also asks family members and children about day-to-day well-being during this treatment period.

Bodø, Nordland
NCT05819931Recruiting
Breathing support sessions for ALS using MIE

This study looks at breathing support sessions using a machine called MIE to help people with amyotrophic lateral sclerosis (ALS). It may help reduce breathing complications for people who haven’t benefited from similar breathing sessions in the last year.

Toulouse, Occitanie
NCT06841341Enrolling by invitation
Predicting breathing problems in ALS

This study uses ultrasound and electrical tests of breathing muscles and nerves to see if they can predict breathing failure in people with ALS. This could help doctors know when a patient might need breathing support.

Krakow, Lesser Poland Voivodeship
NCT05137665Recruiting
Study tracks ALS and health markers over time at home

This study follows people with ALS and healthy volunteers to measure how specific body fluids, symptoms, and at-home tracking change over time. It may help researchers find early signs of disease changes and better ways to measure treatment effects.

Phoenix, Arizona
NCT07467187Recruiting
Home Ventilation with Tracheostomy in Denmark (2016–2025)

This study looks at people in Denmark who need a home ventilator through a tracheostomy. It aims to understand their care and outcomes over several years.

Copenhagen
NCT07071935Recruiting· Phase 2
Early ventilation study for newly diagnosed ALS

This trial tests whether starting non-invasive ventilation (breathing support) early in ALS helps people breathe easier and live better. If you've been diagnosed with ALS in the last 6 months and haven't used a breathing machine before, you may qualify.

Hershey, Pennsylvania

Hear when a new Amyotrophic Lateral Sclerosis trial opens

We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.