Long-term ventilation support and quality of life in ALS
Part of Brain & nervous system, Hormones & metabolism clinical trials.
This study looks at how long-term breathing support (a ventilation device used over time) affects quality of life for people with ALS and their families. It also asks family members and children about day-to-day well-being during this treatment period.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have a diagnosis of probable ALS that matches specific medical criteria
- Your ALS is progressing, and your clinician is considering long-term ventilation support
- You (and for family roles, your family member) can communicate in Norwegian
- You do not have significant cognitive impairment or dementia
- If you join as a child, you must be age 8 or older and your parent has ALS
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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